Drugging
the Children
ADD
& ADHD
Epidemic of a Phantom Disease
There
is no proof that "attention deficits" in children are
anything but normal human variants, yet medical practitioners
are labelling more and more children with this diagnosis and
giving them dangerous stimulant drugs to control their
behaviour.
see
also
Drugging the
Children Video
see
also
Does ADHD
Exist?
Extracted
from Nexus Magazine, Volume 12, Number 2
by
Bob Jacobs, PsyD
PSYCHOLOGICAL,
SOCIAL, POLITICAL AND LEGAL IMPLICATIONS
Attention Deficit Disorder (ADD) is a completely unproven and
highly questionable diagnosis, yet it is the basis for
putting tens of thousands of Australian children on dangerous
stimulant drugs. ADD and its popular sub-type Attention
Deficit Hyperactivity Disorder (ADHD) were invented and not
discovered, and efforts to popularise these diagnoses are
based on politics and economics and have little to do with
medicine.
In 21st-century Australia, when a child habitually
"misbehaves" he or she is said to have a "disease". There are
absolutely no organic or physiological findings to
substantiate the existence of any "disease". "Symptoms" of
this "disease" include such things as standing when told to
sit, fidgeting, and not being happy about doing chores or
homework. Since when did these childhood behaviours, ranging
from normal to non-compliant, become a disease?
Anyone with a modicum of common sense can read the diagnostic
criteria for ADD or ADHD and see the absurdity of this
invented "disease". When the medical community and the
pharmaceutical companies—the chief proponents of this disease
model—admit that they don't know what "causes" this strange
disease and cannot even prove it exists, the chuckles evoked
from reading the diagnostic criteria change to gasps of
disbelief. When we learn that tens of thousands of Australian
children are being drugged with powerful and dangerous drugs
based on this invented "disease", the gasps turn to cries of
outrage.
There are vast implications in labelling children as
"diseased" for behaviour considered undesirable and then
drugging them into compliance. Do we want children growing up
believing that the answer to their problems lies in taking
drugs? Do we want children learning that they are not
responsible for their own behaviours and can instead blame a
mysterious "disease"? Do we want to allow organised
psychiatry, which as recently as 25 years ago told us that
homosexuality is a "disease", to label childhood misbehaviour
as a "disease" in the absence of any proof? Do we want a
society that pathologises non-compliance and values
conformity over individuality, creativity and free
expression?
The physical safety and emotional well-being of Australia's
children are being threatened by the ADHD/ADD diagnosis and
the accompanying proliferation of stimulant drug
prescriptions. A comprehensive inquiry must go beyond the
self-protective jargon of the medical/pharmaceutical
community and ensure, at the very least, that parents and
children are exposed to all sides of this controversy and
given an opportunity for meaningful informed consent before
accepting this diagnosis and filling their prescriptions.
Key
Points•
The number of children diagnosed throughout Australia as
having "ADHD" (or "ADD") continues to skyrocket. • A
significant percentage of these children are placed on
stimulant medications, which are highly dangerous drugs with
significant short-term and long-term side effects. • The
availability of these stimulant medications represents a
significant public health threat in Australia. • The "ADHD"
diagnosis demonstrably lacks reliability. • The validity of
the "ADHD" diagnosis is spurious. • Parents and children are
not given enough information to be able to give meaningful
informed consent before commencing stimulant treatment for
"ADHD". • "ADHD" remains a popular and seductive concept, and
in the absence of intervention the use of the diagnosis and
stimulant drugs is likely to continue to escalate.
The Popularity of "ADHD"
The
numbers of children diagnosed as having ADHD or ADD are
staggering and continue to increase. The popularity of the
diagnosis in Australia has resulted in more and more children
receiving stimulant medications.
For years, clinicians have noted that stimulants have a
paradoxical effect on children. There have been myriad
theories advanced as to the physiological reasons for this,
but none has won universal acceptance. In the past decades
the pharmaceutical industry has told us that ADHD continues
into adulthood and it has advocated the use of stimulant and
stimulant-like drugs for adults as well. This suggests that
while the stimulant effect seems "calming", it may relate
more to a form of intense focusing on one thing (or no thing)
as opposed to being aware of and involved in the various
aspects of the environment.
According to the 30 June 2002 Sydney Sun-Herald: "It is
estimated that at least 50,000 Australian children are now on
these prescription drugs."1 The increase has been nothing
short of meteoric.
"Between 1991 and 1998, prescriptions dispensed for
dexamphetamine sulphate increased by 2400 per cent, while
prescriptions for Ritalin increased by 620 per cent over the
same period."2
"Australian consumption of dexamphetamine rose 592% between
1991 and 1995, while consumption of methylphenidate rose 490%
in the same time period."3
The New South Wales Commission for Children and Young People
asked for community input and heard many worried voices: "A
great many submissions to the inquiry expressed concern about
the increasing use of psychotropic drugs in children with
ADD/ADHD, especially the long-term effects."4
The 1 July 2002 Brisbane Courier-Mail noted that, per capita,
"More children in Australia take psychotropic medication than
do in the US".5 With estimates of the prevalence of ADHD in
the United States ranging as high as 15–18% of school-age
children, this trend is frightening and constitutes a public
health emergency in Australia.
The
Dangers of Stimulant Medications
The
most popular stimulant drugs used for "ADHD"—Ritalin
(methylphenidate) and dexamphetamine—are pharmacologically
similar to cocaine. Just like cocaine, these drugs have
significant effects. They cause children to become more
docile and more compliant. This is true of all children, as
any remnant of the myth that only "ADHD" children react this
way has long since been dispelled. "Indeed, stimulant
medications have been shown to have similar types of effects
in children with diagnosed ADHD and individuals regarded as
normal controls (Peloquin and Klorman, 1986; Rapoport,
Buchsbaum and Monte, 1980; Rapoport, Buchsbaum and Zahn,
1978). These results emphasise that the diagnosis of ADHD
cannot be determined by a positive response to medication."6
Drugged children become more docile and compliant and get
into "less trouble", thus pleasing parents and teachers. But
at what cost? Occasionally the child pays the ultimate cost:
"Stephanie Hall, of Canton, Ohio, believed ADHD was a
disease. She took her Ritalin, religiously. Her parents, Mike
and Janet Hall, believed it too. Stephanie Hall died in her
sleep, 6 days before her 12th birthday, not from ADHD—because
there is no such thing—but from Ritalin, because Ritalin is
an amphetamine and because amphetamines have a long history
of causing sudden cardiac deaths, even in the young."7 "Death
caused from long-term use of methylphenidate (Ritalin): Death
certificate of 14 y/o Matthew Smith, 21/03/01, Oakland
County, Michigan."8
In one sense, it should not be surprising that the use of
psychostimulants can be dangerous and even fatal. These drugs
are among the most controlled and restricted because of their
acknowledged danger. In Queensland, as in some other states
in Australia, physicians must get approval for every
prescription they write for stimulants, and if the treatment
persists beyond two months they must provide an explanation.
"Both dexamphetamine and methylphenidate are controlled drugs
under Schedule 8 of the Health (Drugs and Poisons) Regulation
1996, and they are classified as specified condition drugs
under section 78 of the same regulations, with additional
supply and use restriction."9
Stimulant drugs may lead to depression and thereby might be
contributory to suicide. "The [South Australia Parliamentary]
Committee was disturbed to hear or read the examples of a
number of children who had expressed suicidal
thoughts."10"Suicide is a major complication of withdrawal
from this stimulant and similar amphetamine-like drugs."11
Drugs in general, and stimulants in particular, pose a
significant long-term risk with children because of their
potential developmental effects. It is intuitively obvious
that powerful drugs could affect the process of growth and
development in a child, and this has been widely acknowledged
in the mainstream press, even by the American Psychiatric
Association (publisher of the Diagnostic and Statistical
Manual, or DSM) itself:
"The term developmental toxicology refers to unique or
especially severe side effects caused by interaction between
a drug and the process of growth and development. Children
and adolescents are growing and developing not only
physically but also cognitively and emotionally. It is
important that medications not interfere with learning in
school or with the development of social relationships within
the family or with peers."12
Inevitably we must face the fact that if stimulants affect
growth and development, they very likely affect the
developing brain: "There is now a mountain of evidence that
stimulants disrupt growth hormone production on a daily basis
and that they also can reduce the child's overall growth,
including height and weight… It is hard to imagine a more
serious warning flag than growth inhibition, since it affects
the overall growth of the body and all its organs, including
the brain."13
"The drug commonly used to help Australian children with
attention deficit hyperactivity disorder may cause long-term
changes in the brain. University of Buffalo scientists have
found that Ritalin produced changes in the brains of rats
similar to those seen with stimulants such as amphetamines
and cocaine. Study author Professor John Balzer said the
findings belied the belief that Ritalin, known generically as
methylphenidate, was short- acting."14
"By issuing psychotropics to children, we do in fact create
an interaction between the chemical, the drug, and the
developing organism, and in particular the developing brain,
which is the target organ of a psychotropic."15
"Stimulants such as Ritalin and amphetamine have grossly
harmful impacts on the brain—reducing overall blood flow,
disturbing glucose metabolism, and possibly causing permanent
shrinkage or atrophy of the brain."16
The spectre of these negative effects on growth and
development is even more ominous in light of the fact that
children under the age of six are routinely prescribed
stimulants, despite specific warnings that they are not safe
for use in children that young. There have been reports of
Australian children as young as 15 to 18 months being given
prescriptions for psychostimulants, and at the 2003
Queensland State Youth Conference in Mackay one parent
reported that her doctor suggested her nine-month-old had
"ADHD" and needed to be medicated (fortunately she refused).
Almost more frightening than the potential long-term effects
of psychostimulants is the relatively common "zombie-like"
effect induced in children. Shockingly, two of the leading
biopsychiatric advocates in the United States, L. Eugene
Arnold and Peter S. Jensen, acknowledged the "zombie effect"
in their chapter on ADHD in the Comprehensive Textbook of
Psychiatry: "The amphetamine look, a pinched, somber
expression, is harmless in itself but worrisome to parents…
The behavioral equivalent, the 'zombie' constriction of
affect and spontaneity, may respond to a reduction of dosage,
but sometimes necessitates a change of drug."17
The zombie effect has been described by Dr Peter Breggin this
way: "[This] drug-induced docile behavior is caused by
chemically blunting or subduing the child's higher brain
function. That part of the child's brain requiring
creativity, freedom, play, energetic activity, consistent
discipline and inspiring educational activities will be
blunted."18
With the skyrocketing prevalence rates of this "disorder",
there is a very real possibility that we are raising a
generation of children whose creativity, thinking and spirit
are being blunted by drugs without a verifiable medical
justification.
The Public Health Issue
By
classifying psychostimulants as Schedule 8 drugs, the
Australian government obviously intended to restrict their
availability. Yet the proliferation of prescriptions for
"ADHD" has made these psychostimulants readily available for
recreational use on school playgrounds across Australia.
The illicit use of ADHD drugs is a major problem in
Queensland, as noted by the Crime and Misconduct Commission:
"The abuse of ADHD prescription drugs is a potential problem
for society, the public health system and law enforcement
agencies."19
In New South Wales, "Concern was expressed, in several
submissions to the inquiry, about school children selling,
swapping or sharing their prescription drugs or medication
with other children at school".20
The International Narcotics Control Board (INCB) of the
United Nations has warned of the increasing recreational
abuse of methylphenidate worldwide.21 Recreational use of
psychostimulants has also been associated with other forms of
drug addiction and frequently serves as an easy "first step"
into the world of self-medicating.
"Elizabeth Wurtzel, writing in the New York Times of April 1,
2000, says that Ritalin has been a gateway drug for many with
whom she has interacted at Narcotics Anonymous meetings,
where mothers have admitted stealing Ritalin prescribed for
their kids, and discussed her own experience of chopping up
Ritalin pills and snorting them through her 'nostrils almost
continuously'."22
The United States Drug Enforcement Administration (DEA) has
spoken about this problem, saying that "a number of recent
studies, drug abuse cases, and trends among adolescents from
various sources indicate that methylphenidate use may be a
risk factor for substance abuse".23
Tellingly, as reported in the US press: "A recent study by
researchers at the University of California at Berkeley—a
study of 500 children over 26 years—found that Ritalin is
basically a 'gateway' drug to other drugs, in particular
cocaine. Lead researcher Nadine Lambert, as reported in the
Wall Street Journal, concluded that Ritalin 'makes the brain
more susceptible to the addictive power of cocaine and
doubles the risk of abuse'."24
There is widespread acknowledgement, even among staunch
advocates of the medical model of "ADHD", that there are
other forms of "treatment" available, such as family
counselling, respite care and parenting education. None of
these modalities involves risking the physical well-being of
children. Particularly in light of a recent meta-analysis
that demonstrated there is no educational/learning benefit
for children being treated with psychostimulants,25 it is
completely senseless to risk not only the well-being of the
medicated children but the health of the community of
children at large by continuing to permit the indiscriminate
distribution of these dangerous drugs.
Lack
of Reliability of Diagnosis
The
"reliability" of a diagnosis refers to the degree to which it
is dependable; that is, the degree to which we can rely on
the fact that the diagnosis will be the same regardless of
who is doing the assessment or where the assessment is being
done. For example, a broken arm is diagnosed through X-rays
and there is a high likelihood that if you visited 100
orthopaedic physicians with the same X-ray, all 100 would
make the same diagnosis. "Broken arm" is a highly reliable
diagnosis. In contrast, "ADHD" is an almost completely
unreliable diagnosis. "There are no objective diagnostic
criteria for ADHD—no physical symptoms, no neurological
signs, and no blood tests... No physical test can be done to
verify that a child has 'ADHD'."26
The suggestion that 100 clinicians would likely come to no
consensus on a child diagnosed by anyone as "ADHD" is borne
out by the shocking differences in international prevalence
rates. "[T]he prevalence of ADHD in the UK is generally
estimated at 1% or less, whereas it is at least 10–12 times
greater than that in Australia and the US."27 Shockingly,
this means that if you flew 12 "ADHD" children from Perth to
London and had them assessed, the statistical likelihood is
that only one would be a "confirmed" diagnosis. Factually,
then, the "disorder" is either grossly overdiagnosed in the
US, Australia and Canada, or grossly underdiagnosed in the UK
(and most of the rest of the world). In either case, it is
not a diagnosis that can be depended upon; it lacks
reliability.
Even within countries, wide variations in prevalence rates
preclude the reliability of the diagnosis. For example, an
analysis of the use of stimulant drugs for ADHD in the US
found that "Southern youngsters were about 71% more likely
than kids in the Northeast or West to get the drugs, and
Midwesterners were 51% more likely".28
A closer look at the diagnostic criteria and an understanding
of the DSM process highlights some of the reasons for this
unreliability. Laypeople assume there is some scientific or
objective process in the identification of disorders. This is
typically true in medicine, but it is often not true in
psychiatry. The American Psychiatric Association publishes
the "bible" of psychiatric diagnoses, the Diagnostic and
Statistical Manual, which is currently in its fourth edition
(DSM-IV). An observer at the 1987 APA DSM hearings made the
following disturbing comment: "The low level of intellectual
effort was shocking. Diagnoses were developed by majority
vote on the level we would use to choose a restaurant. You
feel like Italian, I feel like Chinese, so let's go to the
cafeteria. Then it's typed into the computer." A prominent
American psychiatrist, a former chief of the National
Institute of Mental Health's Center for the Study of
Schizophrenia, put it this way: "DSM-IV is the fabrication
upon which psychiatry seeks acceptance by medicine in
general. Insiders know it is more of a political than
scientific document."
Dr Lawrence Diller, discussing the process by which the
DSM-IV criteria were decided, offers this illustration of how
shockingly political the process was. "The main study group
had determined that only five of nine symptoms would be
required to qualify for a diagnosis of 'ADHD:
hyperactive/inattentive subtype' [that is, a 'combined'
version of the disorder]. But then the supervisory DSM-IV
task force astonishingly overruled this decision and
increased the number of symptoms required to six! Presumably
they were concerned that five criteria were too few and might
result in too many children being diagnosed with this type of
ADD, but the arbitrariness of their action has little to do
with science."31
In Western society, which often deifies physicians, it can be
truly shocking to people to realise that this popular
psychiatric diagnosis was invented by a group of folks
sitting around the table, not by a group of scientists
discovering something in a laboratory.
The result of the DSM process is a diagnostic category,
ADD/ADHD, which is completely arbitrary and based solely on
behaviours. The diagnostic criteria raise obvious questions
about validity (discussed in the next section), but the
description of the "symptoms" is also hopelessly subjective
and therefore inherently unreliable. In order to be diagnosed
as having ADHD, a child must have either six out of a list of
nine symptoms of "inattention", or six out of a list of nine
symptoms of "hyperactivity-impulsivity". The symptoms "must
have persisted for at least 6 months to a degree that is
maladaptive and inconsistent with developmental level"
(italics added). However, there is no objective guideline for
assessing the requisite degree of maladaptation; it is left
to the discretion of the individual clinician. Even more
outrageous, every one of the 18 "symptoms" of ADHD is
qualified by the word "often". What constitutes "often"
fidgeting, or "often" having difficulty organising tasks and
activities? There are no objective guidelines. To one
evaluator, a child who is fidgety every day might seem
normal; but to another evaluator (perhaps a childless one), a
child fidgeting a great deal on two occasions might
constitute "often". The reliability problems don't end there.
"Even aside from 'often', the rest of the definition is
riddled with ambiguous and vague terminology. Which mistakes
are 'careless' ones? What constitutes being spoken to
'directly'? What constitutes 'difficulty' in organising
things? Who decides what activities require 'sustained mental
effort'? What is 'easily' distracted? When does a small
movement qualify as a 'fidget' or a 'squirm'? Who determines
when 'remaining seated is expected'? When is running or
climbing or talking 'excessive'?"33
Some of the most mainstream US proponents of the medical
model of ADHD, believing that it is a valid medical disorder,
have acknowledged the lack of diagnostic reliability. In
1998, the National Institutes of Health held a Consensus
Development Conference on Diagnosis and Treatment of ADHD and
heard testimony from a number of "experts", virtually all of
whom supported the medical model. At the end of the
conference, panel chairman Dr David Kupfer acknowledged that
"[t]here is no current validated diagnostic test",34 and
another panel member noted succinctly that "the diagnosis is
a mess".35
Lack
of Validity of Diagnosis
The
"validity" of a diagnosis refers to the extent to which it
describes something that is real and can be proved. "Despite
millions of dollars spent on research over the past twenty
years, much of it subsidised by hopeful drug companies, no
one has yet been able to identify this 'disease' called
ADHD."36
Incredibly, there are many highly respected professionals in
various fields who publicly acknowledge that there is no
proof of the existence of ADHD. Consider the following...
• Psychology professor Diane McGuinness, PhD:
"Methodologically rigorous research indicates that ADHD and
hyperactivity as 'syndromes' simply do not exist."37
• Neurologist Fred A. Baughman, MD: "We are not
mis-diagnosing or over-diagnosing, mis-treating or
over-treating ADHD. It has been a total, 100% fraud
throughout its 35-year history."38
• Associate Professor Robert Reid, PhD, University of
Nebraska: "[T]he causes of ADHD are simply not known."39
• The Australian National Association of Practising
Psychiatrists (NAPP): "[ADHD] is not an inherited genetic
disorder or organic disease" and "scientific evidence to
support ADHD as a disorder is unproven".40
• Psychiatrist Denis Donovan, MD: "ADD is a bogus diagnosis.
Parents and teachers are rushing like lemmings to identify a
pathology... Our current pathologizing of behavior leads to
massive swelling of the ranks of the diseased, the
dysfunctional, the disordered and the disabled."41
• Physician William B. Carey, MD, of the Children's Hospital
of Philadelphia: "What is now most often described as ADHD in
the United States appears to be a set of normal behavioral
variations. This discrepancy leaves the validity of the
construct in doubt."42
• Psychologist John Breeding, PhD: "The diagnosis of ADHD is,
itself, fraudulent."43
• Tunku Varadarajan, Wall Street Journal deputy editorial
features editor: "[I]t's just as much nonsense-on-stilts as
ADHD as it was pure poppycock as ADD."44
• Author Beverly Eakman: "These drugs make children more
manageable, not necessarily better. ADHD is a phenomenon, not
a 'brain disease'. Because the diagnosis of ADHD is
fraudulent, it doesn't matter whether a drug 'works'.
Children are being forced to take a drug that is stronger
than cocaine for a disease that is yet to be proven."45
• Psychologist Richard DeGrandpre, PhD, citing a study in
Pediatrics, a US medical journal, showing that 80% of
children reported as hyperactive at home or school showed
exemplary behaviour and no signs of hyperactivity in the
physician's office: "This finding is consistent with numerous
studies showing, and dozens of newspaper articles reporting,
considerable disagreement among parents, teachers, and
clinicians about who qualifies for a diagnosis. This can only
raise questions about the existence of ADD as a real medical
phenomenon since it is these symptoms alone that are the
basis of the diagnosis."46
• Psychiatrist Peter R. Breggin, MD: "It is important for the
Education Committee to understand that the ADD/ADHD diagnosis
was developed specifically for the purpose of justifying the
use of drugs to subdue the behaviors of children in the
classroom."47
• United States Senator Hillary Rodham Clinton: "Some of
these young people have problems that are symptoms of nothing
more than childhood or adolescence."48
• Psychiatrist Sidney Walker III, MD: "The medical community
has elevated Attention Deficit Disorder (ADD) and Attention
Deficit Hyperactivity Disorder (ADHD) to the status of
diagnoses, and most people believe these are real diseases.
They aren't, and doctors who label children ADD or ADHD don't
have a clue what's really ailing them."49
• Educator and researcher Brenton Prosser, PhD: "The dominant
definition of the condition argues that it is physiologically
based and is best treated with amphetamines, while there
remains no biological basis for these claims."50
• The 1998 Consensus Development Conference, held by the US
National Institutes of Health, came to this conclusion: "[W]e
do not have an independent, valid test for ADHD, and there
are no data to indicate that ADHD is due to a brain
malfunction."51
The question remains as to why practitioners and the public
alike refer to "ADHD" as a demonstrable disorder, when there
is ample evidence that it is not. This phenomenon was
explained by Dr John Jureidini, head of the Department of
Psychological Medicine at the Women's and Children's
Hospital, Adelaide, South Australia, in response to a
question by a parliamentary commission:
"There is monumental literature that takes as a given that
ADHD is a neurobiological condition and starts from there to
talk about different forms of treatment. Once you have many
thousands of articles published about something, how can it
possibly make sense for someone to stand up and say 'This is
not an entity'? I want to emphasise that I quite clearly
acknowledge that there are children who are very compromised
because of difficulties with impulsiveness, attention and
activity. I am not saying that these children are not
suffering or are not worthy of attention. I am saying that,
as a disorder, ADHD is a spurious entity."52
In distinguishing between literal and metaphorical diseases,
American psychiatrist Thomas Szasz notes: "[T]he suggestion
that, say, AIDS and ADHD...are radically different kinds of
diseases—or, more precisely, that the latter is not a disease
at all—is politically so incorrect that it is dismissed out
of hand."53
Proponents of the biomedical model of ADHD are fond of saying
that they believe we are on the brink of discovering an
aetiology; discovering that "ADHD" actually exists. But they
have been saying the same thing for over 20 years. The fact
remains that, in scientific terms, there is no validity to
the construct of a "disease" called ADHD.
The Lack of Informed Consent
There
is no more fundamental human right than the right to bodily
integrity. A hallmark of most legal systems is that innocent
people are protected from anything happening to their own
body without their consent. According to an article in the
DePaul Journal of Health Care Law: "[T]rue consent to what
happens to one's self is the informed exercise of choice, and
that entails an opportunity to evaluate knowledgeably the
options available and the risks attendant upon each."54
The issue of consent to health care of young people was the
subject of a major 1996 report issued by the Queensland Law
Reform Commission.55 It has also been identified by
representatives of various organisations as a major issue
throughout Australia: "The Commissioner for Children and
Young People advised the committee that issues of
confidentiality and consent to health care of young people
were major concerns raised by representatives of more than
thirty youth and health-related organisations at a National
Youth Health Summit organised by the Australian Medical
Association held in Canberra in July 2001."56
Consent without information is no consent at all, and parents
who are told their child has "ADHD" are virtually never told
of the lack of scientific reliability or validity to the
diagnosis. Typically they are not told that there is no
organic or physiological finding associated with the
diagnosis, nor are they told that no one has been able even
to demonstrate that "ADHD" exists. Parents are also often not
told about the dangers of psychostimulants. Australian common
law, international law (particularly the United Nations
Convention on the Rights of the Child, to which Australia is
a signatory) and a basic sense of human decency demand that
any individual has a right to consent to an invasion of their
personal/physical integrity.
Children are almost never given an opportunity to give
consent to treatment with psychostimulants, nor are they
privy to the debate that rages in the professional community
about this diagnosis. This egregious violation of a basic
human right would not be tolerated were it done directly, but
in the guise of "helpful medical care" it becomes more
elusive and difficult to combat.
Why Is ADHD Diagnosis So Popular?
The
rise in the number of children diagnosed in Australia with
ADHD over the past 25 years has been nothing short of
astronomical. Given the acknowledged lack of a known
aetiology or organic/biological marker for ADHD, the question
remains as to why this diagnosis is so popular. There are
four primary "constituencies" for whom the ADHD diagnosis has
been an economic, practical and emotional godsend.
1)
The Drug Companies.
The market for stimulant medication specifically to treat
ADHD exceeds US$600 million annually in the United States
alone! With this sort of profit motive, it is not surprising
that major pharmaceutical companies have been outspoken
proponents of psychiatric diagnoses in general and ADHD in
particular.
Novartis Pharmaceuticals—which held the original patent on
methylphenidate (Ritalin), the most popular US drug for
ADHD—has advertised extensively in both professional journals
and popular media, with ads in the latter aimed specifically
at convincing parents that their child might benefit from
using stimulants. Novartis has also been a generous financial
supporter of Children and Adults with Attention Deficit
Disorder (CHADD), the national parent support group for ADHD.
Perhaps most troubling is the concern expressed by a
University of Michigan neuroscientist and Professor Emeritus
of Psychology: "I am convinced that the pharmaceutical
industry spends enormous amounts of money to increase its
sales and profits by influencing physicians and the public in
ways that sometimes bend the truth and that are often not in
the best interests of science or the public."57
2)
The Physicians.
The primary reason that physicians are seduced by the idea of
ADHD as a biomedical entity is that they desire to be helpful
to their patients. Their entire training and perspective is
steeped in the "medical model": a patient comes to see them
with a symptom and they diagnose and treat it. If ADHD does
not exist, and the behaviours are either part of the range of
normal childhood experience or reflective of some
dysfunctional environment, the medical practitioner is
helpless. Plus, as we'll see in a moment, the stimulant drugs
they can prescribe do produce the desired effect for parents
and teachers, so physicians are positively reinforced by
their patients (or at least their patients' parents) for
being helpful. At the same time, it would be naïve to
overlook the profit motive in this part of the equation.
American psychiatrist Peter Breggin noted: "Biological
interest groups have been pressing for decades to capture the
child market for drugs and for their professional
services."58 Tunku Varadarajan of the Wall Street Journal
wrote: "For psychiatrists to receive payments from health
insurance companies, they must find a way to label a patient
with a recognised condition—which is why they recognise more,
and more, and more conditions. Wait for the next DSM, and
there will be at least another 50 conditions added to the
existing list."59
3) The Parents.
The strongest force in popularising the ADHD diagnosis (and
the use of stimulant drugs) has been parents. Without a
"market", the ADHD phenomenon would have died in its tracks.
Parent support groups, such as CHADD, vehemently deny any
implication that ADHD is anything but a "real" disorder, and
many parents cite the diagnosis and the prescription for
stimulants as having been a miracle for their child and for
their family. The seductiveness of the diagnosis for parents
is readily seen by anyone who has worked clinically with
families experiencing behaviour problems with a child.
In Western society there is an implication that if your child
is misbehaving, then you are an inadequate parent. If your
child is constantly misbehaving around other people or
"getting into trouble" at school, there is an unspoken
assumption that you are unable or unwilling to discipline
properly. The idea of a disease afflicting these children and
causing their misbehaviour is emotionally perfect for some
parents, as they can go instantly from being under suspicion
of inadequate parenting to being martyrs, struggling to cope
with a sick child. Instead of going to family therapy and
learning how they might understand why their child is really
misbehaving or what they could do about it, they can go to
support groups and receive positive strokes and sympathy for
having been dealt such a cruel biological hand.
The seduction is complete with the introduction of stimulant
medication. Studies are conclusive that stimulants cause all
children—whether they have "behaviour problems" or
otherwise—to become more compliant and docile. Obviously,
parents who are troubled by their children's "misbehaviour"
will be pleased as their kids become more obedient. No more
social embarrassment, no more calls from the school. No
wonder so many parents seek the ADHD diagnosis—and swear by
it.
4) The Schools.
It is a fact of modern society that many public schools are
overcrowded and underfunded. Teachers often have to deal with
30, 35 and more students in their class as they try bravely
to provide a decent education. When a particular student is a
distraction or disruption, the teacher understandably wants
the distraction to cease. When other parents are complaining
to the school administration about the misbehaving child, the
administration wants the misbehaviour controlled. If the
misbehaving child can be "diagnosed" and drugged, the
classroom and the school will run more smoothly. This dynamic
has been so powerful that several US states have had to pass
legislation prohibiting non-medical school personnel from
diagnosing children and suggesting medication.
With all these powerful forces combined as not-so-strange
bedfellows, it becomes very clear why ADHD has become an
"epidemic" in Australia. It is a complete circle, too,
because when the diagnosis is made and the child is drugged,
everyone is happy. The drug company has another sale, the
physician has another customer, the parent is vindicated and
the school loses a behaviour problem. Everyone is happy
except the child, and the child has no voice.
Recommendations
(Note:
These are adapted from Queensland Children At Risk: The
Overdiagnosis of "ADHD" and the Overuse of Stimulant
Medication.60)
Clinicians, educators and researchers sometimes tend to
equivocate and "sugar coat" in an effort to sound really
"professional". When our children's physical health and
emotional well-being are in danger, it is time to be very
direct. It is time to "cut to the chase", look at the facts
and tell the truth.
•
We are giving powerful and dangerous drugs to children for a
"disorder" that has never been shown to exist. • We are
allowing pre-schoolers to be drugged with stimulants, despite
the fact that these are not recommended for use in children
under six and despite the fact that no one knows the
potential long-term damage. • We are allowing such a
proliferation of stimulants that these drugs are also being
sold and shared by children like candy. • We are exposing our
children to these dangerous drugs despite evidence that they
have no positive effect and only "work" by creating more
obedient and docile children. • We are failing to provide
parents with the information they need to be able to give
meaningful informed consent, and we are failing to give
competent children any information so they may do the same—in
violation of ethical medical practice, the common law and
international law.
There is very little that everyone can agree upon in the
controversial area of ADHD, but most would agree that further
research needs to be done. At this point there are too many
unknowns, and anyone who claims there is "proof" is not
telling the truth.
It
is bad science to attempt to treat something before we know
what it is. Given the acknowledged dangers of stimulant drugs
to children, families and society, it is common sense to stop
using these drugs until we have identified what, if anything,
ADHD really is. We need to:
1)
Declare a moratorium on stimulant use until such time as
researchers are able to identify a specific organic aetiology
for ADHD, show that stimulants are effective in remediating
the discovered pathology and show that stimulants are safe
for growing children to use in the long term. At the very
least, call for an immediate moratorium on the use of
stimulant drugs in children under six.
2)
Ensure that parents and children are fully informed of both
sides of the ADHD debate, and require that they both sign
meaningful informed consents before receiving any stimulant
drugs.
3)
Require a review by a child guidance professional prior to
beginning any child on medication, and require reasonable
trials with other suggested interventions prior to initiating
the use of stimulant drugs.
Putting
the clamps on the runaway ADHD train will not be popular with
parents who in large numbers rely on stimulants to control
their children and absolve themselves of guilt or
responsibility at the same time. It will not be popular with
teachers who rely on stimulants to subdue difficult children
in the classroom. It will not be popular with children's
physicians who may not know any other way of being helpful in
these situations besides offering stimulant drugs for
behaviour control. It will certainly not be popular with the
drug companies, which will see any open and honest discussion
as a potential threat to their billion-dollar golden goose.
This submission is a plea to all concerned individuals to
take a hard and an honest look at a controversial issue. It
is a plea to protect our children, who cannot protect
themselves from these harmful and needless labels and drugs.
Finally, it is a plea to celebrate the creativity,
spontaneity and energy of childhood and to embrace the unique
beauty of every child. ∞
About
the Author:
Dr
Bob Jacobs has been a children's advocate for over 30 years
as teacher, counsellor, psychologist and attorney. He has a
PsyD degree from United States International University and a
JD degree from the University of Florida. Among many other
activities and roles, Dr Jacobs is presently an Equal Justice
Works Fellow and is on the national steering committee for
the Children's Rights Network of Amnesty International, USA.
His article is based on research he conducted in 2002 in
association with the Youth Affairs Network of Queensland (see
website
http://www.yanq.org.au),
as well as on his extensive experience. Dr Jacobs can be
contacted by email at
DrBobQA@aol.com.
Endnotes
1.
Psychologist Rosemary Boon, quoted in "50,000 hyperactive
children on pills", The Sun-Herald, Sydney, June 30, 2002, p.
10.
2. Mackey, P. and Kopras, A., "Medication for Attention
Deficit/Hyperactivity Disorder (ADHD): An Analysis by Federal
Electorate",
Parliament of Australia, Current Issues Briefs 11, 2000–2001,
April 3, 2001, p. 2.
3. Shaw, Mitchell and Hilton, "Are stimulants addictive in
children?", Australian Family Physician, vol. 29, no. 12,
December 2000.
4. New South Wales Commission for Children and Young People,
Issue Paper No. 5, 2002, p. 6.
5. Ryan, Siobhain, "Australian kids first in mind medicine",
The Courier-Mail, Brisbane, July 1, 2002, p. 5.
6. National Health and Medical Research Council (NHMRC),
"Attention Deficit Hyperactivity Disorder", 4.1, 1997.
7. Baughman Jr, Fred A., MD, The ADHD Consensus Conference:
End of the Epidemic.
8. Smith, Lawrence and Parent, "Ritalin prescription takes
life of 14-year-old", available at
http://www.
rense.com/general25/14.htm
(last visited 05/07/02). 9. "Is Drugging Children the
Answer?", Media Release, Youth Affairs Network of Queensland,
July 1, 2002, at
http://www.yanq.org.au/.
10. Parliament of South Australia, Inquiry Into Attention
Deficit Hyperactivity Disorder, Sixteenth Report of the
Social Development Committee, January 10, 2002.
11. "ADHD" Facts, available at
http://www.fightforkids.com/adhd_facts.htm
(last visited July 5, 2002).
12. Dulcan, M. (1994) Treatment of Children and Adolescents",
in R.E. Hales, S.C. Yudofsky and J.A. Talbot (eds), The
American Psychiatric Press Textbook of Psychiatry, American
Psychiatric Association Press, Washington, DC, 1994, 2nd
edition, pp. 1209-1250.
13. Breggin, Peter R., Talking Back to Ritalin, 1998, p. 25.
14. The Courier-Mail, Brisbane, November 13, 2001, p. 3.
15. Benedetto Vitiello, at National Institutes of Mental
Health (NIMH) and Food and Drug Administration (FDA) joint
conference on future testing and use of psychotropic drugs in
children, 1995.
16. Breggin, supra note 13, p. 54.
17. Arnold, L. Eugene and Jensen, Peter S., MD, in
Comprehensive Textbook of Psychiatry, 1995.
18. Breggin, Peter R., MD, "Upcoming Government Conference on
ADHD and Psychostimulants Asks the Wrong Questions",
available at
http://www.breggin.com/consensuswrong.html
(last visited July 5, 2002).
19. Crime and Misconduct Commission (CMC), "The Illicit
Market for ADHD Prescription Drugs in Queensland", Crime
Bulletin Series, no. 4, April 2002, p. 2.
20. New South Wales Commission for Children and Young People,
Issue Paper No. 3, 2002, p. 6.
21. CMC, "The Illicit Market for ADHD Prescription Drugs in
Queensland", ibid., p. 3.
22. USA Today Magazine, March 2001.
23. Drug Enforcement Administration (DEA), "Methylphenidate
(A Background Paper)", Drug and Chemical Evaluation Section,
Office of Diversion Control, DEA, US Department of Justice,
Washington, DC, October 1995.
24. Massachusetts News, "Ritalin: Violence Against Boys",
available at
http://www.massnews.com/vioboy.htm
(last visited July 2, 2002).
25. Purdie, N., Hattie, J. and Carroll, A., "A Review of the
Research on Interventions for Attention Deficit Hyperactivity
Disorder: What Works Best?", Review of Educational Research,
Spring 2002.
26. Breggin, Talking Back to Ritalin, ibid., pp. 141-142.
27. Jacobs, Bob, "Queensland Children At Risk: The Over
Diagnosis of 'ADHD' and the Overuse of Stimulant Medication",
Youth Affairs Network of Queensland, August 2002, available
at
http://www.yanq.org.au/pdfs/Queensland%20Children%20at%20Risk%20Web%20version.pdf.
28. Elias, Marilyn, "Ritalin Prescribed at Disparate Rates",
USA Today, February 4, 2003.
29. Caplan, Paula, "They're Driving Us Crazy", quoted in
"Death from Ritalin: The Truth Behind ADHD", available
at
http://www.ritalindeath.com/Page/Contro4/html
(accessed June 7, 2002).
30. Loren Mosher quoted in "Death from Ritalin: The Truth
Behind ADHD", available at
http://www.ritalindeath.com/Page/
Contro4/html
(accessed June 7, 2002).
31. Diller, Lawrence, Running on Ritalin, Bantam, 1998, p.
60.
32. Diagnostic and Statistical Manual, 4th edition, 1994.
33. Jacobs, supra note 27, p. 16.
34. Kupfer, David J., NIH Consensus Conference on Diagnosis
and Treatment of ADHD, November 16–19, 1998.
35. Vonnegut, Mark, NIH Consensus Conference on Diagnosis and
Treatment of ADHD, November 16–19, 1998.
36. Jacobs, Bob, "Australian Children at Risk", Law and
Policy Journal of the National Children's and Youth Law
Centre 6, September 2002, Article 13, p. 7.
37. McGuinness, Diane, "Attention deficit disorder: The
emperor's new clothes, animal 'pharm', and other fiction", in
S. Fisher and R.P. Greenberg (eds.), The Limits of Biological
Treatments for Psychological Distress, Lawrence Erlbaum
Associates, Hillsdale, NJ, 1989, pp. 151-188.
38. Baughman, Fred A., "The Totality of the ADD/ADHD Fraud",
available at
http://www.home.att.net/~Fred-Alden/Es5.html
(accessed August 7, 2002).
39. Robert Reid, Oral Testimony to the South Australia
Parliamentary Committee Inquiry into Attention Deficit
Hyperactivity Disorder, Hansard, June 21, 2001, p. 9.
40. Gil Anaf, Oral Testimony to the South Australia
Parliamentary Committee Inquiry into Attention Deficit
Hyperactivity Disorder, Hansard, August 24, 2001, p. 61.
41. Denis Donovan, quoted in "ADHD" Facts, available
at
http://www.fightforkids.com/adhd_facts.htm
(accessed May 7, 2002).
42. Carey, William B., National Institutes of Health
Consensus Conference on ADHD, November 16–18, 1998.
43. Breeding, John, "Does ADHD Even Exist? The Ritalin Sham",
Mothering, July 2000, available at
http://www.wildcolts.com
(accessed May 7, 2002).
44. Varadarajan, Tunku, "Shrinking to Excess: I'll be damned
if I let a psychiatrist near my son'", The Wall Street
Journal, August 21, 2001.
45. Eakman, Beverly, quoted in "ADHD" Facts at
http://www.fightforkids.com/adhd_facts.htm
(accessed 07/05/02).
46. DeGrandpre, Richard, from Ritalin Nation (Norton, 2000),
quoted in "ADHD" Facts, available at
http://www.fightforkids.com/adhd_facts.htm
(accessed 07/05/02).
47. Breggin, Peter R., Testimony before Subcommittee on
Oversight and Investigations, Committee on Education and the
Workforce, US House of Representatives, September 29, 2000.
48. Rodham Clinton, Hillary, in USA Today Magazine, March,
2001.
49. Walker III, Stanley, quoted in "Death from Ritalin: The
Truth Behind ADHD", available at
http://www.ritalindeath.com/Page/Control.html
(accessed 07/05/02).
50. Prosser, Brenton, "Hearing Silenced Voices: using
narrative research with marginalised youth", Flinders
Institute for the Study of Teaching, August 1998, available
at
http://www.users.senet.com.au/~tolls/rants/hearingsilenced.htm
(accessed 07/03/02).
51. National Institutes of Health Consensus Development
Conference on ADHD, Final Statement, November, 18, 1998.
52. John Jureidini, Oral Testimony to the South Australia
Parliamentary Committee's Inquiry into Attention Deficit
Hyperactivity Disorder, Hansard, September 21, 2001, p. 119.
53. Szasz, Thomas, Pharmacracy: Medicine and Politics in
America, Praeger, 2001, p. xxiv.
54. Baker, J., "Tardive Dyskinesia: Reducing Medical
Malpractice Exposure Through a Risk-Benefit Analysis", DePaul
Journal of Health Care Law, 1997.
55. Queensland Law Reform Commission, Consent to Health Care
of Young People, Volume Three: Summary of the Commission's
Report, Report No. 51, December 1996.
56. New South Wales Commission for Children and Young People,
"Inquiry Into The Use of Prescription Drugs and
Over-the-Counter Medications in Children and Young People",
Issue Paper No. 1: Background Issues, 2002, p. 15.
57. Elliot Vanetin quoted in "Death from Ritalin: The Truth
Behind ADHD", available at
http://www.ritalindeath.com/Page/Contro6.html
(accessed July 5, 2002).
58. Breggin, supra note 13, p. 176.
59. Varadarjin, supra note 44.
60. Jacobs, "Queensland Children At Risk", supra note 27.
FAIR USE
NOTICE: This site may contain copyrighted material, the use
of which has not been specifically authorized by the
copyright owner. This website distributes this material
without profit to those who have expressed a prior interest
in receiving the included information for research and
educational purposes. We believe this constitutes a fair use
of any such copyrighted material as provided for in 17 U.S.C
§ 107.
NOTE TO AUTHORS: If you are the author or owner of an article
or video that I have made available through THEINFOVAULT.NET
and you do not wish to have your article or video posted on
theinfovault, please contact me and I
will remove the item.